Month: April 2025

Watch the Soft White Underbelly interview and portrait of Patrick Girondi — an Italian-American singer-songwriter, author, and founder of San Rocco Therapeutics, a gene therapy company committed to developing safe and accessible cures for Sickle Cell Disease and Thalassemia. Originally from the South Side of Chicago, Girondi has released seven…

As part of the GARDEN Network’s continuous effort to share valuable resources in the field of rare hematological diseases, this month we feature the work of Prof. Carlo Dufour on the modern management of Fanconi anemia. This rare genetic disorder, characterized by progressive bone marrow failure and cancer predisposition, remains…

As part of the GARDEN Network’s focus on innovation and the 2025 Agenda, we want to highlight recent contributions in the field of Artificial Intelligence applied to medical research. Featured works include research by Peter Robinson, on the potential use of the Human Phenotype Ontology (HPO) in rare hematology, and…

In this brief journey through history, we will provide insights—and in some cases, interesting facts—about the key figures and discoveries that have progressively led to a radical shift in the approach to treating thalassemia patients over the past 150 years. This story is divided into four chapters: Chapter 1: The…